I first wrote about BAV in a short post here at the blog back in 2009. A few hours after helping the woman, she began to experience chest aches, soreness in both arms, nausea and clammy skin. I love running. I know I will need it replaced. He is now 15. Website designed by Gatorworks. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. Bicuspid aortic valve is the most common congenital cardiovascular anomaly, occurring in 1-2% of the population. Running it is important for me but if it has a problematic effect , I would opt for power walking My father has struggled with heart disease since he was 50, and I lost him [in 2008].. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. The procedure was performed at the Cleveland Clinic. It is very difficult to find information regarding the athlete and BAV. Thank you for this blog! This can be very frustrating to athletes who are used to being more active. And lastly, the degree of healing in the remaining (unoperated) aorta probably has a big impact on the potential risk. http://games.crossfit.com/athlete/39565 Bicuspid aortic valve can be found in 1% to 2% of the general population . Make no mistake, though. Athletes with BAV who have no stenosis or regurgitation of the aortic valve AND have no enlargement of the nearby aorta may participate fully in their sports. Perhaps you could print out the diagram, take it with you to the cardiologist, and ask him/her to circle the forms of exercise that would be safe in your case. I am mostly a runner, 4 times a week, with 10 21 km races. I got Edwards magna perimount 25mm bovine AV and Valsava graft for aortic root replacement. I am a 55 years old male and have BAV. Semilunar valves: The pulmonary valve and aortic valve. I was wondering if you could give your opinion on my scenario. swimming? As Schwarzenegger previously had two cardiac procedures, it is possible that Arnold may have received aTAVR using a Valve-in-Valve approach to replace his failing aortic tissue valve that was implanted in 1997. Pop Medicine > Celebrity Diagnosis . But if you have a bicuspid aortic valve, you only have two cusps. The singer co-founded the Womens Heart Alliance, which works to raise awareness and funds research to fight womens heart disease. With the blood thinning needed for a mechanical valve, serious bleeding may occur with injuries. This is ridiculous. A different set of. I have: This gives a chance for the sternum, which was split during the operation, to heal completely. Most patients (like me), however, start to experience problems during their 30s, 40s, and 50s. You would never know meeting these celebrities that they had a CHD. ( I was much worse though). The mechanical valve conduit replaces the valve with a mechanical valve and the aorta with a Dacron fabric tube. Ive seen several cardiologist and they are divided in recommendations. What is your opinion about dissection in low/controlled messures? I played competitive amateur football (soccer) on Saturday and Sunday from age 16. I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. However, I absolutely love being competitive at running, and dont want to jeopardize that either. I appreciate your response, thank you for taking the time to write me back. My aorta diameter is 4.0 cm and has increased by 0.8 cm (from 3.2 cm) in the past 5 years so the diameter is increasing rapidly. Thats always the concern with new techniques with limited follow-up data. No LV chamber chamber dialiation, normal LV wall thickness, good LC systolic function, No regional LV wall motion abnormality. Seven months ago I had emergency AVR due to a BAV that was severely compromised by endocarditis. I have not had any issues since my surgery. Now at 33 years of age the valve is 23 years old and has served me very well. How severe are the problems? I am a 60 yo female who has been active my whole life. Maybe a genewho knows. I am concerned about removing the coronary arteries and re attaching them again etc. Current guidelines suggest no restrictions on activity for athletes with BAV who have no stenosis/regurgitation and who have a normal sized aorta. no tiredness, no dizziness, etc. Adam Pick is a heart valve patient and author of The Patient's Guide To Heart Valve Surgery. Youll need to rely on your doctors for advice about your condition. I am young with many years ahead, I dont want to accept this just yet when I know theyre is possibilty of repair. So for that first month, we usually advise no driving, lifting, pulling, pushing, reaching, etc. That said, guidelines from the 36th Bethesda Conference suggest that BAV, without enlargement of the nearby aorta or problems with the aortic valve, shouldnt preclude any sports activities.including weight lifting. Normal biventricular size and function, no scar. (liver cysts noted). I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. The risk of BAV in children of parents with BAV is probably about 10%. http://www.energystretch.com Bicuspid aortic valve (aka BAV) is a form of heart disease in which two of the leaflets of the aortic valve fuse during development in the womb resulting in a two-leaflet (bicuspid) valve instead of the normal three-leaflet (tricuspid) valve. However, randomized, controlled trials have excluded bicuspid aortic valve (BAV), which is the most frequent congenital heart disease occurring in 1% to 2% of the total population and representing at least 25% of patients 80 years of age or older referred for aortic valve replacement. After an MRI, Ive been diagnosed with BAV and mild aortic coarctation. Im not sure how you should best sort out the differing recommendations from your doctors. They all cause a small bit of obstruction to blood flow as it leaves the heart. I have 4 children and a great wife. The average lifespan for a cow valve or pig valve is about 10 to 15 years, according to the Cleveland Clinic. I lifted weights for many years and spent almost all my life in physically demanding jobs. Glad to hear that youve found a surgeon and settled on a plan. Me, i`m nearly 43, male and have BAV. After his procedure, Arnold posted the picture above with the following statement, "Thanks to the team at Cleveland Clinic, I have a new aortic valve to go along with my new pulmonary valve from my last surgery. E. G. I could bench 50lbs with no need to strain and hold my breath, which wouldnt result in a massive spike in blood pressure, but if I tried to bicep curl 50lbs it would do. The doc says the big risk is due to the blood thinners. It is believed that Schwarzenegger had a bicuspid aortic valve which led to a Ross Procedure operation performed in 1997. My name became public 25 years ago this week. I took it up 7 years ago. The issues related to repeat aortic valve surgery, with or without replacement of the aorta, are complicated. Aortic valve stenosis: Your aortic valve narrows, reducing blood flow through it. And its always valuable to frame up discussion in terms of how much risk is acceptable. Yesterday, for example, I spoke with a 71-year old patient who just had aortic valve replacement surgery due to this . Thank you for best websit. I recently also did a 24hr EKG (holter) which was fine. Stories of Bicuspid Aortic Valve. Follow up for development of these functional lesions is indicated. Details of my condition: A HR limit of 120 will be tough, I would guess. Thanks for sharing your sons story with BAV. Elite triathletes and heart problems Im obviously quite anxious that Ill drop death! Hi Sean, I see Im not alone. These leaflets open and close to regulate blood flow from the heart into the aorta, and prevent blood from flowing back into the heart. These techniques are most applicable to situations in which there is regurgitation, rather than stenosis, of the valve and when there is also enlargement of the aorta. Many congenital heart defects cause few or no symptoms. Im 53. I have severe aortic stenosis with no signs or symptoms. Ordinarily, athlete patients with mild degrees of valve regurgitation can continue to participate in their sports. Call 911. , Bicuspid Aortic Valve Disease, Acquired Valve Disease. The guidelines do not address the frequency of surveillance for individuals with BAV and no enlargement of the aorta. The exact cause of aortic enlargement in patients is not known. Consensus guidelines are developed to be broadly applicable, but the guidelines may not be applicable in a given athlete patients circumstance. The recovery from heart surgery can be hard to predict for any given patient, but we know that young otherwise healthy patients tend to do well. I just thought it was muscle strain., My body cleared the blockage itself, said the game show host, who credited the aspirin he was taking for what he thought was simple muscle pain. They call this type of heart attack the Widow Maker," she wrote. Reply. This is amplified when I sit with my feet up (male cross-legged) because of the tingling/numbness in feet. 2012; 109:1632-1636. I have also had a stress test, which showed no issues at all. My doctor says i use losartan for decrease my blood presure. An abnormal aortic valve develops during the early weeks of pregnancy, when the baby's heart is developing. Patients whove had aortic valve replacement and/or replacement of the aorta will require life-long monitoring by their doctor, with periodic echocardiogram and/or chest CT scanning. Bicuspid aortic valve with Marfan and other HTAD when the ascending aorta is dilated >45 mm. Symptoms of bicuspid aortic valve disease most commonly develop in middle age in people with a history of a childhood heart murmur. Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three. However, there are few reports about the safety and efficacy of TAVI in type 0 BAV. He also has minimal leakage at the valve aorta. The readers here would love to hear back from you as you work through this. Im 39 also diagnosed with BAV when I was 31. They ruled out Marfans syndrome because his aorta was dilating. I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. Many patients with surgery for BAV, even if it involves aortic root replacement, lead rather normal lives afterwards. I cant lift over 40lbs and I cant continue my work as a tradesman as it requires lifting over the 40lb mark. Im a 33 yro female, diagnosed with BAV. I cant imagine life without CrossFit, but I wont be able to continue will I? We want our patients to know that whatever the level of care they need, our team will design and implement the health plan that works best for them, Starnes said. Normal function of cardiac valves I eat relatively well, but sometimes having those pizzas and burgers late at night I had to change that.. . Diagnosed last year while looking at something else. Max Page - Child Actor (Darth Vader in VW Superbowl ad) - Tetralogy of Fallot. I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. Together, you should be able to settle on what sports activities will be safe based on those facts. I had a Type A aortic dissection of the ascending aorta that extended into the descending aorta terminating near the femoral arteries. However, many people will develop complications from their BAV and may need surgery in their lifetimeeither to repair or replace the aortic valve, the thoracic aorta or both. I am a marathoner with BAV and no other cardiac issues. I know they really should get checked, and they will. Kinda like a marathon but it will take me at least 9 hours. Mild to moderate ai My exercise is limited to 30 minutes of moderate carido, with no weights. I say this based on the fact different exercises will allow for differrent weight tolerances than others, in addition, stronger people can handle more weight than others. I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. I am an having trouble seeing the difference in the ross procedure and the bioprospthetic valve replacement as far as benefits go? Frequency of congenitally bicuspid aortic valves in patients 80 years of age undergoing aortic valve replacement for aortic stenosis (with or without aortic regurgitation) and implications for transcatheter aortic valve implantation.Am J Cardiol. Think to report back to let us know how things go for you, personally. I would like to get back into it, but obviously I have been having some concerns. I think we would expect less enlargement over time with stopping strenuous exercise. Ive done the Philly a Marathon a coup,e times and know that its a terrific event. But, while doing my cardio stress test they discovered that I have a Bicuspid Aortic Valve. We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. Less than one month ago Schwarzenegger was (virtually) hosting the Austrian World Summit of the Schwarzenegger Climate Initiative, which introduced speakers like Prince Charles, Jane Goodall, and Pakistani Prime Minister Imran Khan. After the scans, ultrasounds, stress tests and TOE, I was diagnosed with BAV with no Stenosis, no Aortopathy and no evidence of Coarct and normal LV size and function. Aortic regurgitation (also called aortic insufficiency), which is a leaky valve. Last i took him for the check up and everything is still the same but they said now the guidelines has changed and he is on the borderline of Mild to Moderate which will move him to restricted activities. Crossref Medline Google Scholar. Ive not found any programs for evaluating repaired athletes unless something exist with a physiologist research lab. Jeff. I do think that aspects of the martial arts are strength-related. Just still unsure however if my bioprosthetic valve affects my cross country running times. The flaps are called cusps. What Is Bicuspid Aortic Valve Disease? I realise that I will eventually need the valve replaced again and just hope that things go as well next time. Hello Dr. Creswell, It's the most common type of congenital heart disease (heart defect that's present at birth) and often goes unnoticed until later in life. Im a 51 year old male who had aortic repair (5.8 cm) and bovine valve replacement AVR surgery 2 years ago. Latifah has taken on her mom's caregiving duties, along with relatives and a nurse, whenever she is on the east coast. Like you mention, one theory is related to the aortic blood flow. Both are important in deciding if and when operation is needed. Its also clear-cut that patients with significant enlargement of the aorta to greater than 5.0 cm need operation for replacement of the aorta. I have only trivial aortic regurgitation. Thank you sincerely for your time and information. The cardiologist doesnt do the surgery we have to go to another province to have surgery. I take BP medication namely Amlodopine & Ramipril which has lowered my BP. I would not want yo distinguish between the various forms of static exercise that you mention. My Dr. gave me the all clear to go back to my exercise routines. Bicuspid aortic valve refers to a spectrum of deformed aortic valves with two functional leaflets or cusps which are often unequal in size. And judgment would be needed. "Women are the natural caregivers; we take care of everyone else under the sun," she says. Hi . 1. This blog helped me a lot in my panic days, it put me at ease when I was worrying to much, just to see and to know your enemy and to realize that you are not alone is great help.

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